December 14, 2009
Today Diann and I are driving from Knoxville, TN to Raleigh, NC to visit some friends and head to the ALS clinic on December 15th to meet with the Dr. Bedlack in hopes of getting some new information on ALS, how to slow down the progression of ALS, and ultimately find a cure for it. Duke’s ALS clinic has seen some great results with its patients in slowing down its progression. My goal is to learn more about ALS and become a crusader in finding a way that I can help slow down my progression as well as help to find a cure for anyone and everyone that has ever been affected by this life altering disease. Information is a powerful tool and I am looking forward to absorbing as much as possible during the time that I am there.
I am meeting with the Dr. Bedlack at 8:30 on the 15th (my birthday) to review my case with him and spend some time with his team of specialist and physical therapists. I am scheduled to be there all day (about 8 hours) I am interested in learning about whatever tests they have available that I can be a part of in helping to find a cure and I am very interested in being a part of the stem cell research project that most recently got the FDAs approval.
Diann has spent endless hours and days pulling together all of my Dr. appointment information, x-rays, etc. and has put a detailed time line of events together for the Dr. to review regarding my case. I never thought in a million years that I would have a file the size of a small phone book on everything that I have gone through so far.
I am looking forward to this educational meeting and am hoping for some positive feedback! As my daughter Angela says miracles are happening all the time, we just have to be open to them, and pay attention! Thank you again for all of your prayers and support it means the world to me!